Navigating the terminology surrounding end-of-life care can be daunting. Join us, as we explore and define a variety of terms commonly used at the end of life. Active Dying: The final phase of life (usually the last days and hours) marked by a decline in physical function where the body starts to slow down. Advance Care […]
A Heartwarming Visit to the Butterfly Hub at Princess Alexandra Hospital
We recently had the pleasure of visiting the Butterfly Hub at Princess Alexandra Hospital in Harlow, and we can’t stop thinking about it… 🦋 From the moment we stepped in, the atmosphere was warmth and comfort. It’s a cosy oasis, with a beautiful stained-glass window and calming colours that instantly make you feel at ease. […]
Anne Robson Trust wins National Lottery funding
We were thrilled to hear that we have been successful in our application to the National Lottery’s ‘Reaching Communities’ fund. The Anne Robson Trust will receive a total of £223,000 over three years, with the aim of ‘Stepping up to support people at the end of life.’ The funds will go towards growing our work […]
And the winner is …
We were very excited when, back in July, we heard that Peter Harrison from Norwich had nominated us in the Best Health Charity category for The Sun’s Who Cares Wins Awards. The Butterfly Volunteers, managed by Caroline Stevens, had supported him and his wife Christine, as she sadly died in the Norfolk and Norwich University […]
Recognising Dr Peter Carter OBE and 75 Years of the NHS
Last week we celebrated the 75th anniversary of the NHS. The “Nursing Times has compiled a list of 75 nurses and midwives who have contributed in a significant way to the service or are rising stars.” We couldn’t be prouder of our trustee and previous CEO of the Royal College of Nursing, Dr. Peter Carter […]
Planning for the dreaded ‘D’ Word
Despite death being something we all face, we tend to avoid using the words death, dying or died and use phrases like ‘they passed away’ or ‘they’re no longer with us’ and many other euphemisms when we have to discuss it – So what is the best way for us to approach the subject and […]
Self-care when someone close to you is dying
Caring for someone you love at the end of their life is never easy.
BBC features the Butterfly Volunteers during Dying Matters Week
Butterfly Volunteers are a vital part of the hospital’s work. They provide comfort and companionship to patients and their families during the final days of life.
The most important conversation you can have
We always think we have time, but sadly this isn’t always true. As well as you know your loved ones, do you honestly know their wishes when it comes to the send-off they want?
Happy Birthday Mum!
Born on 5th December 1930, My mum, Anne Robson, would have been 92 today. It is 12 years since she died, in circumstances that prompted me to set up the Anne Robson Trust. I hope she would be proud of all we have achieved in the whirlwind four years since we launched the charity. For […]