The 8th May 2024 will be the UK’s first Advance Care Plan Day. This year’s theme is ‘Getting your House in Order’ – which is built on a foundation of ‘What Matters Most’ to you.
“Being a Butterfly Volunteer makes life more meaningful”
Being a Butterfly Volunteer and supporting people at the end of their life can be a profound experience. We spoke to Rita about why she chose to be a Butterfly Volunteer.
Have you got your ‘House in Order?’
The 8th May 2024 will be the UK’s first Advance Care Plan Day. This year’s theme is ‘Getting your House in Order’ – which is built on a foundation of ‘What Matters Most’ to you.
Understanding Common End-of-Life Terms
Navigating the terminology surrounding end-of-life care can be daunting. Join us, as we explore and define a variety of terms commonly used at the end of life. Active Dying: The final phase of life (usually the last days and hours) marked by a decline in physical function where the body starts to slow down. Advance Care […]
Dying is not as bad as you think
In our humble opinion this short video “Dying Is Not As Bad As You Think,” by Dr Kathryn Mannix is 4 minutes of footage that every person should watch. Originally filmed in 2018 for BBC ideas, Palliative Care expert and author, Dr Kathryn Mannix breaks down the taboos around death and explains in a simple, […]
A Letter To My Grandchildren
We are constantly humbled by the amazing work of the Butterfly Volunteers. A member of one of the teams recently told us about a letter he helped a patient to write to her Grandchildren in the days before she died. We have changed names and some of the detail but the emotion comes through in […]
Actively Dying: What Does it Mean?
You may have listened to the feature about our work on BBC Radio 4’s You and Yours programme, which aired on Friday 14th September, 2018 (listen again here). A number of people who heard the interview have asked what I meant when I said that it can take people up to 3 days to “actively […]