“Being a Butterfly Volunteer makes life more meaningful”

Being a Butterfly Volunteer and supporting people at the end of their life can be a profound experience. In 2023 Central London Community Healthcare NHS Trust launched a team of Butterfly Volunteers to support care home residents who are in the last months, weeks and days of their life. We spoke with Rita about her rewarding role as a Butterfly Volunteer.

What made you want to become a volunteer at CLCH?

“I was specifically interested in the Butterfly Volunteer role because I had been looking for a way to provide support to people who are dying. I didn’t realise such a role existed within the NHS until a friend, who is also a CLCH volunteer, mentioned it to me. They said, “I think this looks perfect for what you’re looking for,” and it truly seemed like a perfect match.”

Tell us about your role as a Butterfly Volunteer…

“As a Butterfly Volunteer, I spend my days visiting a local care home and sitting with residents who are nearing the end of their life. My main focus is to offer support and companionship in whatever way is needed in that moment. I appreciate that the role gives me some freedom in how I interact with residents while also providing clear boundaries.

My activities vary; I might chat with them, listen to their stories, watch TV, enjoy the view from a window, or even sing. Sometimes I assist with small tasks or help them find a nurse. My goal is to be responsive and understanding, tailoring my support to what will best help the resident at that time. These interactions can last anywhere from five to fifty minutes, depending on the needs of the residents or their family members.”

What do you enjoy the most about being a Butterfly Volunteer?

“Despite the difficult and painful context, the opportunity to create moments of joy and uplift is incredibly precious. If I can help bring happiness to someone in their final days, it adds immense meaning to my own life. Each shift stays with me, and seeing residents smile because they are pleased to see me again is truly uplifting. It’s rewarding to know that, even in a short time, I’ve made a positive impact on their lives. It makes life feel much more meaningful.”

Do you support family members too?

“Absolutely. For example, I once spent nearly an hour and a half with a resident’s daughter, offering support in a different way than I do with residents. It was very meaningful to share ideas on how she could interact with her mum, who wasn’t very conscious. I could see her daughter was unsure about how to be with her mum. I reassured her that it’s okay to touch her mum, hold her hand, and talk to her. Even if her mum wasn’t responding, she could still probably hear her voice. Helping her connect and say goodbye in a meaningful way was incredibly impactful.”

Would you recommend being a Butterfly Volunteer to others?

“Definitely, for the right person. If you feel drawn to this kind of work and have a degree of resilience, it can be incredibly rewarding. Our society often struggles to face death and dying in a positive way, so if you have the strength to handle this, it’s a beautiful opportunity to make a difference. It’s not an easy role, but it’s special because it allows you to use your compassion and empathy to support others during such a crucial time.”

Would you like to be a Butterfly Volunteer?
Get in touch with CLCH today!

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